Chuck's Stroke Warriors Newsletter
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Issue #26: Breaking the Stigma: Talking to Your Family and Friends.

Issue #26: Breaking the Stigma: Talking to Your Family and Friends.

Tips on communicating openly and educating your loved ones.

Chuck Volz
December 05, 2023

Updates and Recent Developments

A Novel Approach to AFib: Stages, Prevention, and Therapy

The article discusses a new approach to managing atrial fibrillation (AFib), emphasizing early rhythm control, lifestyle modifications, and a more personalized stroke risk assessment. The guideline introduces a novel classification system for AFib, which highlights the disease's progression and underscores the importance of employing various strategies at different stages. These strategies include prevention, lifestyle and risk factor modification, screening, and therapy

https://medicalxpress.com/news/2023-11-early-rhythm-lifestyle-modification-tailored.html

New Tool for Brain Health: MGH's 21-Point Brain Care Score

Researchers at Mass General Hospital have developed a 21-point 'Brain Care Score' system to help individuals assess their risk of developing dementia or stroke. The system, recently highlighted in Frontiers in Neurology, is based on a questionnaire that reviews physical health and social life. The score is divided into three sections: Physical, Lifestyle, and Social Emotional. The more healthy habits an individual practices, the higher their score, indicating a lower risk for stroke or dementia. The tool is designed to translate decades of scientific research into a simple, accessible format that promotes brain health and disease prevention

https://whdh.com/news/know-the-score-mgh-develops-brain-care-score-tool-that-promotes-brain-health-ways-to-reduce-risk-of-dementia-and-stroke/

Walking Again: How Robotics Aid Stroke Survivors at Syracuse University

Researchers at Syracuse University are using robotics to aid in the rehabilitation of stroke survivors, helping them regain their ability to walk. The research involves the use of wearable robotic exoskeletons to improve therapy and rehabilitation. Patty Jowett, a stroke survivor, is part of this ongoing research. Since her stroke in 2014, she has been using these robotic aids, including a special cycle, robotic shoes, and patches that send electrical jolts to her muscles, to help with her recovery. The research is led by Dr. Victor Duenas, who emphasizes the transformative impact these devices can have on the lives of stroke survivors

https://scrippsnews.com/stories/researchers-at-syracuse-help-those-who-suffered-strokes-walk-again/

Australia's Medical Advances Inspire UK's New Healthcare Plans

The shadow health secretary of the UK, after a week-long visit to Australia, has proposed the adoption of Australian medical systems and advances in Britain. In an interview with The Telegraph, he announced plans for a new network of GP hubs that would operate during evenings and weekends. These hubs would bring together GPs, dentists, and minor injury treatment services, among others, with the aim of alleviating the pressure on A&E units

https://www.telegraph.co.uk/news/2023/12/03/australia-better-uk-stroke-heart-treat-labour-plans/

Surviving Strokes and Grief: Kris Letang's Life Beyond the Ice

The article discusses the personal journey of Kris Letang, a Pittsburgh Penguins' All-Star defenseman, who has faced significant challenges in his life, including surviving two strokes and the death of his father. Despite these hardships, Letang's passion for hockey has helped him recover emotionally, and he has gained a new perspective on life, realizing that there is more to life than just hockey

https://uk.sports.yahoo.com/news/life-bigger-hockey-kris-letang-110038495.html

Partner Credited with Saving the Life of Dallas Fire Prevention Officer Who Suffered a Stroke

The article from Fox 4 News reports that a Dallas fire prevention officer, Clarence Briggs, was welcomed back to his job after suffering a stroke. He credits his partner, officer Gisell Delgado, with helping to save his life. The incident occurred in July while they were on an inspection, and Delgado took him to the emergency room where they found out he had a stroke. Briggs expressed his gratitude towards his partner and family for their support during his recovery, emphasizing the importance of their presence in his life.

https://www.fox4news.com/news/dallas-fire-prevention-stroke-partner-saves-life

Rising Stroke Cases Among Younger Adults: A Disturbing Trend

The article "Health Spotlight: Stroke cases rising among younger adults" discusses the increasing incidence of strokes among younger adults, a demographic that was once considered low-risk. The rise is attributed to poor lifestyle choices such as smoking, unhealthy diets, lack of exercise, and increased stress, which lead to problems like high cholesterol, high blood pressure, and obesity. Additionally, the article mentions that forceful and rapid neck rotations during chiropractic adjustments can potentially cause damage to the vertebral arteries supplying blood to the brain stem. This trend highlights the importance of raising awareness about stroke risk factors and symptoms among younger adults.

https://www.wishtv.com/news/health-spotlight/health-spotlight-stroke-cases-rising-among-younger-adults/

Research Suggests Reduced Thromboembolic Burden and Improved Stroke Outcomes with LAAC

The article discusses a study comparing the outcomes of left atrial appendage closure (LAAC) and direct oral anticoagulant (DOAC) prophylaxis in patients with atrial fibrillation. The key findings indicate that patients who underwent LAAC experienced fewer disabling or fatal strokes compared to those on DOACs. The data also suggest a lower thromboembolic burden after LAAC. The study's lead researcher, Dr. Vivek Y. Reddy, noted that the reasons for these differences are not fully understood, but one possibility is a lower thromboembolic burden after LAAC. The research highlights the potential benefits of LAAC in reducing stroke severity and mortality in atrial fibrillation patients

https://www.healio.com/news/cardiology/20231204/less-stroke-severity-mortality-after-laa-closure-vs-doac-prophylaxis

Thoughts and Insights

Hey Stroke Warriors!

Chuck here, your friendly neighborhood stroke survivor and your go-to cheerleader. This week, let's tackle a topic that might feel as tricky as nailing a Theraband routine: “talking to your loved ones about your stroke.”

But fear not, brave warriors! I've got the tips and tricks to guide you through these conversations with confidence and grace. Remember, open communication is the key to healing, and by educating your loved ones, we can break down the stigma surrounding strokes, empowering both you and those around you.

So, grab your metaphorical grab bars (Oh Crap!! Handles 🙂 ), and let's dive in:

1. Start with Honesty (with a sprinkle of sugar):

Be straightforward, but no need to make it gloomy. Instead of saying, "I'm so clumsy now," try, "I'm learning to walk again, and it's like rediscovering the joy of baby steps!"

2. Be an Information Ninja:

Knowledge is power, and in this case, it's also your ally against stigma. Arm yourself with facts about stroke recovery, its different forms, and the common struggles you might face. I've even got some hilarious Ted Talks about strokes to recommend!

3. Practice Makes Perfect (and less awkward):

Role-play with a trusted friend or family member. Anticipate their questions, rehearse your responses, and prepare some witty comebacks for those outdated "stroke of luck" jokes (eye roll). The more prepared you feel, the less nervous you'll be.

4. Empathy is Your Superpower:

Remember, your loved ones might be just as lost as you were initially. Acknowledge their concerns, validate their fears, and answer their questions patiently. This isn't about lecturing; it's about building a bridge of understanding.

5. Humor is the Ultimate Weapon (but use it wisely):

Laughter is the best medicine, even after a stroke. A well-timed joke about forgetfulness or a funny anecdote about a therapy session can break the ice and humanize your experience. Just steer clear of self-deprecating humor – you're a warrior, not a punchline!

Bonus Tip:

Embrace vulnerability. Sharing your emotions, fears, and even moments of weakness can create a deeper connection and foster true empathy. Remember, you're not alone in this fight.

Disclaimer:

I'm not a therapist, but I am a stroke survivor who's navigated my fair share of awkward conversations. These tips are just a starting point. Every family dynamic is different, so tailor your approach accordingly. And if things get too heavy, don't hesitate to seek professional guidance.

Remember, Stroke Warriors, communication is your ally. Use it, embrace it, and watch the walls of stigma crumble around you. You've got this!

Understood?

Tips and Techniques

3 Conversational Gems for Stroke Warriors and Their Loved Ones:

1. Embrace Imperfection:

Forget scripts and polished monologues. Aim for genuine, heartfelt conversations, even if they're messy or emotional. Remember, your loved ones want to connect with the real you, not a carefully constructed persona. Think of it like painting a masterpiece – it's the brushstrokes, the happy accidents, and the emotional depth that make it truly special.

2. Listen Actively,

Speak Authentically: Communication is a two-way street. Give your loved ones the space to express their concerns, fears, and questions. Nod thoughtfully, ask clarifying queries, and avoid interrupting. When it's your turn to speak, be honest and authentic. Share your experiences, vulnerabilities, and yes, even your occasional stroke-related goof-ups (we've all been there!). Humor can be a disarming tool, but remember, self-deprecation is a no-go. You're a warrior, not a clown.

3. Celebrate Small Victories:

Recovering from a stroke is a marathon, not a sprint. Acknowledge and celebrate every milestone, no matter how seemingly insignificant. Did you walk an extra step today? High five! Did you manage to button your shirt without assistance? Woohoo! Sharing these victories with your loved ones reinforces your progress, boosts morale, and reminds everyone that you're on this journey together.

Remember, communication is a muscle, and the more you exercise it, the stronger it becomes. Don't be afraid to stumble or stammer – it's part of the process. With a dash of honesty, a sprinkle of empathy, and a whole lot of love, you can turn those awkward conversations into bridges of understanding and support.

Let's keep breaking the stigma, one open and honest chat at a time!

Now, let's move on to the fun stuff!

Silly Humor Section:

What do you call a stroke survivor who's always late?

Chronologically challenged!

AI-Generated Writing and Art:

This week, our resident AI is feeling a bit poetic. Here's a haiku for you:

Stroke's sudden blow,

Life rebalanced, slow but sure,

Love paints the way back.

Beyond Words: Luke's Letter of Eternal Gratitude to Abby

In the soft glow of candlelight, Luke settled into a quiet room, pen in hand, ready to weave a tale of gratitude to Abby. His journey through stroke recovery had been a wild ride, and through it all, Abby stood firm by his side, an unwavering beacon of support.

Dearest Abby,

As I pen down these words, emotions surge within me, a torrent too vast for mere words to express. Our journey through the labyrinth of stroke recovery has been a challenge, but your love has been a constant, guiding light.

Recall those tentative first steps, each one shrouded in uncertainty and fear? I clung to your steadfast support, your encouraging words transforming each wobble into a triumphant stride. Your belief in me, even in my moments of doubt, ignited a determination I never knew existed.

In the initial days, when frustration threatened to overwhelm, you were my calm amidst the storm. Your patience and understanding became pillars on which I leaned when the burden of rehabilitation seemed insurmountable.

Setbacks were formidable, but your love, more resilient still. In the hush of those moments, your hand in mine spoke volumes, assuring me that every obstacle was one we faced together. Our resilience, a shared force, conquered challenges, leaving us stronger than before.

As days melted into weeks, and weeks into months, your unwavering support blossomed into a symphony of shared laughter, whispered dreams, and an unspoken bond beyond words. Abby, you became my muse of hope.

Reflecting on the journey, I stand in awe of the strength within us. Your love, a melody drowning the discord of doubts and fears. We danced through difficulties, each step revealing not just a partner but a lifeline.

While this stroke altered the trajectory of our lives, it couldn't diminish the love we share. If anything, it magnified it, making every victory, no matter how small, a triumph we celebrate together.

Here I am, baring my soul on paper, attempting to capture the depth of my gratitude. You are my rock, my anchor, the love propelling me forward. Abby, my stroke warrior, my partner in this extraordinary journey.

With all my love,

Luke

Until next week, keep fighting, keep smiling, and keep inspiring.

Disclaimers

Disclaimer:

The information provided in this newsletter is for general informational purposes only and is not intended to constitute professional advice.

Medical Disclaimer:

The content shared in this newsletter is not intended to be a substitute for professional medical advice.

Accuracy Disclaimer:

While we make every effort to provide accurate and up-to-date information, the content in this newsletter may contain errors, omissions, or inaccuracies.

That's it for this week's newsletter, dear Stroke Warriors! Keep in mind,life doesn't stop after a stroke – it's an opportunity to embrace new experiences. Remember, you are not alone on this journey, you are strong, and together, we can overcome any challenge.. Embrace your rehabilitation with determination, and know that progress is within reach.

We hope you found the information valuable and informative.

With the assistance of AI, I am able to enhance my writing capabilities and produce more refined content.

This newsletter is a work of creative AI, striving for the perfect blend of perplexity and burstiness. Enjoy!

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